Bøger

Post Polio Syndrome Management and Treatment in Primary Care (The Blue Book) skrevet og udgivet af den irske patientforeningen Polio Survivors Ireland. Kan downloades her Post-Polio-bluebook-2024.pdf

Black bird fly away: disabled in an ablebodied world – Gallagher H. This unusual autobiography is a collection of writings, some previously unpublished, by a man who is recognized today as the father of the Architectural Barriers Act of 1968 and the grandfather of the Americans with Disabilities Act. He takes readers on a journey through his life, his reaction to his own disability, his public courage, and his very private desperation. (Udgivet på Vandamere Press 1998)

FDR’s Splendid Deception: The Moving Story of Roosevelt’s Massive Disability-And the Intense Efforts to Conceal It from the Public – Hugh Gregory Gallagher. The book traces FDR’s developments from the early years, his battle with polio, his fight for rehabilitation, his paralysis and his need to hide it, both in public and in private-as well as the impact the paralysis and its cover-up had on his political career, his personality, and his relations with others. (Udgivet på Vandamere Press 1999)

The Polio Paradox – Richard L Bruno. A guide to what postp Polio Syndrome is and how you can live with it. (Udgivet på Little Brown & Company 2003)

Paralysed with Fear – The Story of Polio – Gareth Williams. The story of mankind’s struggle against polio is compelling, exciting and full of twists and pardoxes. One of the grand challenges of modern medicine, it was a battleground between good and bad science. Gareth Williams takes an original view of the journey to understanding and defeating polio. (Ud givet på Palgrave Macmillan 2015)

Polio: The Odyssey of Eradication – Thomas Abraham. provides a compelling, in-depth investigation into the decades-long global campaign to eradicate polio. The book examines the complex hurdles of this mission, contrasting the triumph of early vaccines with modern challenges like geopolitical instability, vaccine hesitancy, and regional violence. (Udgivet på Hurst 2018)

Warm Springs : Traces of a Childhood at FDR’s Polio Haven – Susan Richards Shreve: At Warm Springs, Shreve found herself in a community of similarly afflicted children, and for the first time she was one of the gang. Away from her protective mother, she became a feisty troublemaker and an outspoken ringleader. She navigated first love, rocky friendships, religious questions, and family tensions—and experienced healing of all kinds. During her stay, the Salk vaccine would be discovered, ensuring that Shreve would be among the last Americans to have suffered childhood polio. (Udgivet på HarperCollins 2008)

Living with Polio: The Epidemic and Its Survivors – Daniel J. Wilson: Blends historical research with deeply personal stories from over one hundred polio survivors, detailing how they coped with lifelong disability. (udgivet på University of Chicago Press 2005 )

To Stand On My Own: The Polio Epidemic Diary of Noreen Robertson, Saskatoon, Saskatchewan, 1937 – Babara Haworth -Attard In a horrible twist of fate, Noreen, like hundreds of other young Canadians, contracts polio and is placed in an isolation ward, unable to move her legs. After a few weeks she gains partial recovery, but her family makes the painful decision to send her to a hospital far away for further treatment. (Udgivet af Scholastic Canada 2010)

A Summer Plague Polio and Its Survivors – Tony Gould: A comprehensive account of the polio epidemic in the West, from the first major outbreak in New York in 1916 to post-polio syndrome, combining biographical, political, social, and microbiological perspectives and focusing on key individuals, such as President Roosevelt, Jonas Salk, and Sister Elizabeth Kenny. (udgivet på Yale University Press 1995).

Three Minutes for a Dog: My Life in an Iron Lung- Paul R Alexander:  The saga of the life of Paul Alexander who required the assistance of an “Iron Lung” respirator for all his life. Paul Alexander has crafted his life against all odds and has a courageous and compelling story to share with us all. (udgivet på FriesenPress, 2020)

Dancing Past the Light: The Life of Tanaquil Le Clercq – Orel Protopopescu, The book cinematically illuminates the glamorous and moving life story of Tanaquil “Tanny” Le Clercq (1929‒2000), one of the most celebrated ballerinas of the twentieth century, describing her brilliant stage career. She came ill with polio during a proformance in Copenhagen, the book describes her struggle with polio, and her important work as a dance teacher, coach, photographer, and writer. (Udgivet på University Press of Florida 2021)

And They Shall Walk: The Life Story of Sister Elizabeth Kenny – Elisabeth Kenny Martha Ostenso: Elizabeth Kenny was an unaccredited Australian nurse who promoted a controversial new approach to the treatment of poliomyelitis in the era before mass vaccination eradicated the disease in most countries. Her findings ran counter to conventional medical wisdom; they demonstrated the need to exercise muscles affected by polio instead of immobilizing them. Kenny’s principles of muscle rehabilitation became the foundation of physical therapy, or physiotherapy. (Udgivet på Dodd, Mead & Company 1965)

Sister Kenny: The Woman Who Challenged the Doctors –  Victor Cohn: the Australian-born nurse, is remembered by thousands of grateful parents and grandparents of young polio patients, as well as others who were less personally affected, as the woman who successfully fought the medical profession to win acceptance of her techniques to combat the crippling effects of this disease.  (Udgivet af   Univ Of Minnesota Press1976 )

Dancing in My Dreams: Confronting the Spectre of Polio – Kerry Highley: Dancing in My Dreams explores the impact of polio on individuals and communities, highlighting the experiences of patients and the voices of survivors. It delves into the debates between medical professionals and alternative therapists, focusing on the contrasting approaches of Dr. Jean Macnamara and Sister Elizabeth Kenny. Readers will discover the challenges faced by those affected by polio, the social stigma they endured, and the resilience they demonstrated in the face of adversity. (Monash University Publishing 2015)